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→‎Video: what is problem?
→‎Video: This is the problem: this is a good video for a few dozen years ago, for the traditional general knowledge of celiac disease, which basically everyone knows, but it does not reflect current advances.
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[[User:Jrfw51]] also felt in that discussion that the content was reasonable. [[User:Doc James|<span style="color:#0000f1">'''Doc James'''</span>]] ([[User talk:Doc James|talk]] · [[Special:Contributions/Doc James|contribs]] · [[Special:EmailUser/Doc James|email]]) 23:05, 27 March 2018 (UTC)
[[User:Jrfw51]] also felt in that discussion that the content was reasonable. [[User:Doc James|<span style="color:#0000f1">'''Doc James'''</span>]] ([[User talk:Doc James|talk]] · [[Special:Contributions/Doc James|contribs]] · [[Special:EmailUser/Doc James|email]]) 23:05, 27 March 2018 (UTC)
:@[[User:SlimVirgin|SarahSV]]: What is the problem with the video as it is now, after it was updated? To this unenlightened reader, the video appears to give a terrific overview of the complex series of events behind the disease. It would be very hard to present that information in prose in a way that educated anyone who was not already familiar with many of the details. [[User:Johnuniq|Johnuniq]] ([[User talk:Johnuniq|talk]]) 02:54, 28 March 2018 (UTC)
:@[[User:SlimVirgin|SarahSV]]: What is the problem with the video as it is now, after it was updated? To this unenlightened reader, the video appears to give a terrific overview of the complex series of events behind the disease. It would be very hard to present that information in prose in a way that educated anyone who was not already familiar with many of the details. [[User:Johnuniq|Johnuniq]] ([[User talk:Johnuniq|talk]]) 02:54, 28 March 2018 (UTC)

::This is the problem: this is a good video for a few dozen years ago, for the traditional general knowledge of celiac disease, which basically everyone knows, but it does not reflect current advances. We can not continue thinking / talking about celiac disease as a simple digestive disease, it is a systemic autoimmune disease: [http://www.worldgastroenterology.org/guidelines/global-guidelines/celiac-disease/celiac-disease-english The World Gastroenterology Organisation Global Guidelines (WGO) (2016) '''The most important obstacle to implementing the recommendations is poor awareness of celiac disease by patients and physicians. Among gastroenterologists, there is a sense that celiac disease''' does not require follow-up by a specialized physician after diagnosis and '''may be considered a minor condition''' in comparison with irritable bowel disease (IBD) and inflammatory bowel syndrome (IBS).(...) '''There is an urgent need to increase awareness among primary-care physicians and pediatricians about the wide diversity of clinical manifestations'''.]

::Two specialized entities of undeniable weight worldwide, among others, have updated the CD definition: the European Society of Pediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN) and the [[World Gastroenterology Organisation|WGO]].
::*[http://www.espghan.org/fileadmin/user_upload/guidelines_pdf/Guidelines_2404/European_Society_for_Pediatric_Gastroenterology_.28__1_.pdf ESPGHAN: CD is an immune-mediated '''systemic disorder''' elicited by gluten and related prolamines in genetically susceptible individuals and characterised by the presence of a variable combination of gluten-dependent clinical manifestations]

::*[http://www.worldgastroenterology.org/guidelines/global-guidelines/celiac-disease/celiac-disease-english WGO: Celiac disease (CD) is a chronic, '''multiple-organ autoimmune disease''' that affects the small intestine in genetically predisposed children and adults.]

::People who made the Osmosis video only know the classic ideas about CD: a digestive disease, with positive antibodies and villous atrophy. There were deficits practically at all points, they corrected some of them, but there are others that are very important and they have not corrected.

::See for example in the list of symptoms, which starts at about 7:33: ''Children: abdominal distension, failure to thrive and diarrhea and chronic diarrhea, bloating, symptoms vary'' and a mention to the dermatitis herpetiformis. Well, with this approach we can recognize 10-15% of cases, nothing more.

::Realize that the first reported evidence that celiac disease might present with extraintestinal manifestations was made by Shuster, Marks and Watson in 1963-65 and the first detailed descriptive study of patients with celiac disease and a neurological deficit was published by Cooke and Smith in 1966. Do not you think we've already lost too many years? Do not you think it's time to banish errors that are doing so much damage and are leaving almost most cases without recognizing?

::The video of Osmosis dynamite all the work and the effort made during the last years, perpetuating all these errors of concept that is costing so many years to overcome.

::Let's see a couple more examples of 2015, from ''Nature Reviews Gastroenterology & Hepatology'' (Impact Factor: 13.678):

::*PMID 26260366 (2015). "Coeliac disease is a common disorder that can arise at any age and typically presents with a broad spectrum of symptoms. T'''he disease is thought to be underdiagnosed, in part owing to the fact that coeliac disease is often characterized by associated conditions and extraintestinal manifestations that can misdirect and impede diagnosis.''' Some of these manifestations are direct consequences of autoimmunity, such as dermatitis herpetiformis or gluten ataxia, whereas others are indirectly related to inflammation and/or malabsorption including anaemia, osteoporosis, short stature and delayed puberty. Any organ from the central nervous system to joints, liver or teeth can be affected. '''In some cases, extraintestinal symptoms are the only clinical manifestations of coeliac disease''' or occur in conjunction with diarrhoea and malabsorptive symptoms. '''An increased awareness among medical practitioners of the variety of extraintestinal manifestations of coeliac disease is essential to improve diagnosis and treatment'''."

::*PMID 26303674 "The abnormal immunological response elicited by gluten-derived proteins can lead to the production of '''several different autoantibodies, which affect different systems'''"

::I made very detailed explanations in [https://en.wikipedia.org/wiki/Talk:Coeliac_disease/Archive_5#Coeliac_disease_video this discussion].

::I have not changed my mind: the video must be updated or removed. I can not accept that the video is not improved because it requires a lot of time of work (we will have to dedicate the time that it takes, to have mediocre information and mediocre videos we already have hundreds of websites and videos on Youtube): [https://en.wikipedia.org/w/index.php?title=Talk%3ACoeliac_disease&diff=prev&oldid=713044623 "''To give some perspective, making edits to these videos does not take 2 seconds. The edit we made on your suggestion took a couple of hours of work'' --OsmoseIt"] or because [https://en.wikipedia.org/w/index.php?title=Talk%3ACoeliac_disease&diff=prev&oldid=713044623 ''"We feel your other suggestions are an expansion of the scope of the video, beyond what we want to cover for our target audience.'' --OsmoseIt".] This is Wikipedia and we have to comply with Wikipedia policies and objectives, not Osmosis team objetives.

::Anyway, notice my good will, because two years have passed, I'm having patience. This issue has now come to light for other wider reasons, alien to me; however, it is good to take this opportunity and that Osmosis resume CD video work. --[[User:BallenaBlanca|BallenaBlanca]] &#128051; ♂ [[User talk:BallenaBlanca|<small>(Talk)</small>]] 13:31, 28 March 2018 (UTC)

Revision as of 13:31, 28 March 2018

Featured articleCoeliac disease is a featured article; it (or a previous version of it) has been identified as one of the best articles produced by the Wikipedia community. Even so, if you can update or improve it, please do so.
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March 26, 2007Featured article candidatePromoted
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Coeliac/Celiac: Please read prior discussions regarding the name of this article at /Archive 1#Requested move.

Social and Cultural Section

This could be expanded on to include how Coeliac's disease affects society beyond the context of religion, especially western religions.Ksq4 (talk) 14:22, 2 February 2018 (UTC)[reply]

I wish to point out that oe is a diphthong in English language as it is a separate symbol œ. Modern keyboards lack the diphthong which is a problem for those who prefer to use the full symbol set instead of a subset. ae is another problem. — Preceding unsigned comment added by 24.244.32.182 (talk) 21:43, 18 February 2018 (UTC)[reply]

Video

Video explaining celiac disease

The video has now been removed. Looking back here a number of changes User:BallenaBlanca requested were carried out.

User:Jrfw51 also felt in that discussion that the content was reasonable. Doc James (talk · contribs · email) 23:05, 27 March 2018 (UTC)[reply]

@SarahSV: What is the problem with the video as it is now, after it was updated? To this unenlightened reader, the video appears to give a terrific overview of the complex series of events behind the disease. It would be very hard to present that information in prose in a way that educated anyone who was not already familiar with many of the details. Johnuniq (talk) 02:54, 28 March 2018 (UTC)[reply]
This is the problem: this is a good video for a few dozen years ago, for the traditional general knowledge of celiac disease, which basically everyone knows, but it does not reflect current advances. We can not continue thinking / talking about celiac disease as a simple digestive disease, it is a systemic autoimmune disease: The World Gastroenterology Organisation Global Guidelines (WGO) (2016) The most important obstacle to implementing the recommendations is poor awareness of celiac disease by patients and physicians. Among gastroenterologists, there is a sense that celiac disease does not require follow-up by a specialized physician after diagnosis and may be considered a minor condition in comparison with irritable bowel disease (IBD) and inflammatory bowel syndrome (IBS).(...) There is an urgent need to increase awareness among primary-care physicians and pediatricians about the wide diversity of clinical manifestations.
Two specialized entities of undeniable weight worldwide, among others, have updated the CD definition: the European Society of Pediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN) and the WGO.
People who made the Osmosis video only know the classic ideas about CD: a digestive disease, with positive antibodies and villous atrophy. There were deficits practically at all points, they corrected some of them, but there are others that are very important and they have not corrected.
See for example in the list of symptoms, which starts at about 7:33: Children: abdominal distension, failure to thrive and diarrhea and chronic diarrhea, bloating, symptoms vary and a mention to the dermatitis herpetiformis. Well, with this approach we can recognize 10-15% of cases, nothing more.
Realize that the first reported evidence that celiac disease might present with extraintestinal manifestations was made by Shuster, Marks and Watson in 1963-65 and the first detailed descriptive study of patients with celiac disease and a neurological deficit was published by Cooke and Smith in 1966. Do not you think we've already lost too many years? Do not you think it's time to banish errors that are doing so much damage and are leaving almost most cases without recognizing?
The video of Osmosis dynamite all the work and the effort made during the last years, perpetuating all these errors of concept that is costing so many years to overcome.
Let's see a couple more examples of 2015, from Nature Reviews Gastroenterology & Hepatology (Impact Factor: 13.678):
  • PMID 26260366 (2015). "Coeliac disease is a common disorder that can arise at any age and typically presents with a broad spectrum of symptoms. The disease is thought to be underdiagnosed, in part owing to the fact that coeliac disease is often characterized by associated conditions and extraintestinal manifestations that can misdirect and impede diagnosis. Some of these manifestations are direct consequences of autoimmunity, such as dermatitis herpetiformis or gluten ataxia, whereas others are indirectly related to inflammation and/or malabsorption including anaemia, osteoporosis, short stature and delayed puberty. Any organ from the central nervous system to joints, liver or teeth can be affected. In some cases, extraintestinal symptoms are the only clinical manifestations of coeliac disease or occur in conjunction with diarrhoea and malabsorptive symptoms. An increased awareness among medical practitioners of the variety of extraintestinal manifestations of coeliac disease is essential to improve diagnosis and treatment."
  • PMID 26303674 "The abnormal immunological response elicited by gluten-derived proteins can lead to the production of several different autoantibodies, which affect different systems"
I made very detailed explanations in this discussion.
I have not changed my mind: the video must be updated or removed. I can not accept that the video is not improved because it requires a lot of time of work (we will have to dedicate the time that it takes, to have mediocre information and mediocre videos we already have hundreds of websites and videos on Youtube): "To give some perspective, making edits to these videos does not take 2 seconds. The edit we made on your suggestion took a couple of hours of work --OsmoseIt" or because "We feel your other suggestions are an expansion of the scope of the video, beyond what we want to cover for our target audience. --OsmoseIt". This is Wikipedia and we have to comply with Wikipedia policies and objectives, not Osmosis team objetives.
Anyway, notice my good will, because two years have passed, I'm having patience. This issue has now come to light for other wider reasons, alien to me; however, it is good to take this opportunity and that Osmosis resume CD video work. --BallenaBlanca 🐳 ♂ (Talk) 13:31, 28 March 2018 (UTC)[reply]

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